Wednesday, June 10, 2015

Super Ultrasound

We made it to the day with the ultrasound appointment. I prayed all the time. I prayed for Levins and Cullie. I prayed that everything would be ok. I also prayed for peace. I prayed that God would give me the strength no matter the outcome to be the Husband and Father I needed to be.

We finally get called back to another one of the dark whisper rooms. The ultrasound tech we have is awesome. She is flying through it. She is measuring everything. She measures Levins' bones. Femur and humerous are all measuring a couple days ahead of schedule. I light up. That is another indicator of Down Syndrome if the bone structure is shorter than normal. She gets to the stomach and says she agrees with the other specialist and she can not definitely see the stomach. But she says the fluid levels are not high which is a good sign. She then can not find the nasal bone. She then says she sees the small heart issue. So basically the girl I thought did not know anything, was actually doing a great job.

The specialist then comes in the room. She sits down with us and explains that these are all indicators of DS. My heart drops. She said that they are not 100 percent indicators, but they are soft indicators. As a Man you want 100 percent. We know black and white. What is grey area?

Then another person walks into the room. She is called a Geneticist. She then goes over our options. There are a few tests we can try to see if they can give us black and white. One was a amniocentesis. We said before we went that this was something we were not interested in. Reason we were not is the risk of losing Levins. We did not feel it necessary to have that test.

She then recommended the Harmony Test. I personally had never heard of it.

 http://www.ariosadx.com/

Above is their site. Look over it and see the numbers.

The general gist I got was they take blood from Cullie and test it for increased levels of any of the Trisomy possibilities. We opted for the test. It takes a little over a week for the results.

The Doctor then says we are going to have to go see another specialist at the Children's Hospital. WHAT?!?! She said there is a few small things on the heart that they want a Pediatric Cardiologist to look into.

We wait again to go to the next dark whisper place.

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