I will never forget the moment I first laid my eyes on her. She was blue, almost purple. She honestly did not look like she was breathing. I did notice immediately that our Princess was blessed with an extra chromosome. That moment taught me a huge lesson. It taught me that the chromosome did not matter; all that mattered was I wanted my daughter to scream and let me know she was breathing. It felt like the longest 45 seconds of my life. I finally heard her gasp for air and make a few baby noises. It was a surreal moment getting called over to see her up close for the first time. She is exactly what I dreamed she would be. She is gorgeous and she is ours. Cullie got to hold her before they took her to NICU. The Ped's team is awesome. They let her lay in her cart in the hallway so our family could see her. I don't think they will every know how much that meant to us.
They took her to NICU and about an hour later came back with results. She has two blind ends to her esophagus and to her stomach. We were told of the babies with this condition, very few have this issue. It takes a lot more time to stretch the esophagus so it can meet the stomach. We originally had in our heads that she would be in the NICU for around a month, but now we are planning months. She needs to grow and the surgeons will work daily on helping to make each end stretch. She will require a button feeding system in her stomach to feed her until the major surgery happens.
It is going to be a hard couple of months. I honestly do not think we have any idea what we are getting into. I do know that Levins is amazing. She has amazed me in the few hours I have known her. She is going to show the world what kind of fighter she is. I know we have several people praying for her, but it never hurts to ask for more prayer. Please pray for Levins, Rett, Cullie, myself and our families during the next couple months. I believe God has a plan for our Family and I know it is special.
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